The project
Friday March 4th, 2022

Who are we and what multiple sclerosis is

AISM, the Italian Multiple Sclerosis Association, is the only organization in Italy that takes care, in a structured and organic way, of all the aspects related to Multiple Sclerosis (MS), through an overall perspective that embraces the theme of the rights of people with MS. , health and social-health services, the promotion, the orientation and the financing of scientific research.Founded in 1968 to represent the rights and hopes of people with MS, in order to guarantee them the possibility of carrying out their life project, our task is to provide hospitality, information, guidance, support and services. Every day, in a widespread manner, thanks to a network that includes 98 provincial sections, regional coordination, 50 operational groups, and thanks to the energy and enthusiasm of over 13,000 volunteers. For the RESEARCH, in order to identify the effective therapies and treatments to slow down the course of the disease and to find a decisive cure tomorrow, we have to take in action all the resources, thanks also, since 1998, to the work of the Italian Multiple Sclerosis Foundation (FISM). Multiple sclerosis (MS) is a chronic, unpredictable, often disabling disease, and one of the most serious of the central nervous system. MS can begin at any age of life, but it is mostly diagnosed between the ages from 20 to 40 and especially in women, who are three times more affected than men.The cause, or better, the causes are still partly unknown. The most common symptoms are motor difficulties, visual disturbances, loss of balance, spasticity, lack of strength, fatigue, sensitivity disorders, like sexual and cognitive, of the humor, speech and sphincter function disorders. In Italy there are 130,000 people with MS, in the province of Pavia about 900 people.

Why is it important to play adapted physical activity (AFA)

For people with MS, physical activity helps prevent postural disorders by strengthening muscles and bones and by increasing elasticity, as well as by reducing the sense of fatigue. If carried out consistently and in contexts of social activities, it is also supportive in dealing with moments of discouragement and depression.By Adapted Physical Activity (AFA) we therefore mean a non-health exercise programs, carried out in groups, specially designed for people with chronic diseases aimed at lifestyle modification for the secondary and tertiary prevention of disability. The AFA activity integrates with the rehabilitation activity provided by the area of Pavia.If carried out in water, the AFA exploits the properties of water (weightlessness and support) to increase the residual skills necessary for various motor activities. The body weight is lightened up to 90% (if the dive is up to shoulder height) in order to face the various rehabilitation exercises with a significantly reduced effort.In fact, water facilitates movements and allows for a better stabilization of posture. For this reason, it becomes easier to walk or to maintain an upright position, sometimes impossible out of the water. This activity has an important psychological and motivational impact, as the person is able to perform tasks that is unable to perform out of water. Finally, the activity in pool also plays a role in improving social integration.Naturally, it is necessary to evaluate the characteristics of the swimming pool and adopt the criteria for access to this activity that guarantees its safe performance. For the reasons mentioned above, if you want to start this activity, contact the contact person for the Wellness Activities Guidelines (see below) to prepare an ad hoc project.

Why to do Acquagym

Water aerobics consists of group gymnastics practiced in the water to the rhythm of music which involves both bodyweight exercises and with the use of various tools. This activity aims to promote the development of the muscles and the elasticity of the joints, as well as to achieve greater mental well-being. Doing water aerobics allows you not only to tone muscles, to improve movement and sensitivity, and to reduce stress and tension but, according to a study, it is also a valid solution to relieve the symptoms of people affected by multiple sclerosis. In fact, water eliminates the problem related to the body weight, which comes down to the 90% when immersed up to the shoulders: the movements are thus less tiring and violent impacts on the joints are avoided. In addition, the water temperature, which is usually around 26 ° -27 °, guarantees constant cooling and prevents excessive heat from leading to a worsening of the symptoms of multiple sclerosis.

Goals that this project realistically intends to achieve with the money raised through this crowdfunding campaign

The main objectives of this project are:

  • prevent the onset of secondary complications related to immobility
  • prolong the benefits of rehabilitation;
  • create moments of socialization and prevent social isolation.

In MS, to take part of AFA activities has the following benefits:

  • Improve of strength, endurance and endurance;
  • Increase of lung capacity (it improves the strength of the respiratory muscles and increases the body’s ability to use oxygen to produce energy in a more efficient way);
  • Improve fatigue;
  • Improve or maintenance of muscle elasticity;
  • It improves stress and mood

LINK:
WEBSITE: https://www.aism.it/struttura/sezione_provinciale_aism_pavia/home_page
FACEBOOK: https://it-it.facebook.com/aismsezionepavia/
INSTAGRAM: www.instagram.com/aismsezionepavia
Contact: aismpavia@aism.it

Goals

GOAL: 5.000 euro

2.000 euro

Wellness activities (AFA)- trainer

3.000 euro

Passive leasing – strcture for AFA (swimming pool)

Video

Media Gallery

Team

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Paola Calegari

Presidente AISM PAVIA e referente attività persone con SM - President of AISM PAVIA and person of reference for people with MS | Founder

Paola Calegari

Presidente AISM PAVIA e referente attività persone con SM - President of AISM PAVIA and person of reference for people with MS | Founder
I’m an Asim Member since 2013 and since 2019 I hold the role of the President of the Provincial Section of Pavia. I plan, promote and supervise all activities in the area that meet the needs of people with Multiple Sclerosis. I deal with the planning, the promotion, the supervision and the monitoring of information activities aimed at people with MS in synergy with the indications and priorities identified at national level, by applying the logic of analysis of the contact system and thus guaranteeing the section's ability to maintain constant visibility of AISM. I understand the needs of people with MS that are in contact with the Section, and I elaborate organized answers to specific problems. I guarantee the Section's ability to be in regular contact with the network of services of its territory, by creating the conditions of an integrated work for the management of the problems of people with MS. I ensure and encourage the Section's ability to manage and maintain the continuous relationship with all people with MS who come into contact with AISM by capitalizing the collected information, by analyzing the data and by providing elements and guidelines to the various work groups. I take care of the organization of all direct support activities for people with multiple sclerosis. Projects and services can be completely managed by AISM, or they can activate collaborations, partnerships, up to completely external services. I coordinate this water aerobics project in collaboration with the Folperti Pool of Pavia.
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Cinzia Bettolini

Incaricato accoglienza giovani con sm - Responsible of young people with MS’welcome

Cinzia Bettolini

Incaricato accoglienza giovani con sm - Responsible of young people with MS’welcome
Cinzia Bettolini concretely takes care of ensuring a first reception, information and guidance to young people with MS, who contact the section either personally or by mail or telephone. She put in contact, listen, talk and establish an ongoing relationship with young people with MS known by the Section, in order to guarantee a periodic monitoring of the needs and living conditions of all people in contact, starting with whom we have no contact for a long time. In front of specific problems of a person, in collaboration and with the supervision of the Reception Officer, she takes action to find and provide all the information necessary to give a reply, she moves towards the network of services to collaborate to the resolution of the case or to support the person to agree the activation of the necessary internal services.
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Fabiola Ferraresi

Comunicazione online - Online communication officers

Fabiola Ferraresi

Comunicazione online - Online communication officers
Fabiola Ferraresi and Emanuele Sacchi manage the online presence of the Section through the tools and communication channels provided, contributing for the part of their competence and together with other involved volunteers, to the planning and implementation of the communication plan. They manage the online channels (like our section website and our social network) to allow an adequate visibility and strengthen, also through contact and continuous updating, the relationship with their target audience. They prepare the texts and digital contents suitable for offering on the site an overview of what the Section offers in terms of services, activities, events, initiatives and contact methods.
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Emanuele Sacchi

Comunicazione online - Online communication officers

Emanuele Sacchi

Comunicazione online - Online communication officers
Fabiola Ferraresi and Emanuele Sacchi manage the online presence of the Section through the tools and communication channels provided, contributing for the part of their competence and together with other involved volunteers, to the planning and implementation of the communication plan. They manage the online channels (like our section website and our social network) to allow an adequate visibility and strengthen, also through contact and continuous updating, the relationship with their target audience. They prepare the texts and digital contents suitable for offering on the site an overview of what the Section offers in terms of services, activities, events, initiatives and contact methods.
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Loredana La Russa

Referente ufficio stampa - Press office contact

Loredana La Russa

Referente ufficio stampa - Press office contact
Loredana La Russa guarantees the section's ability to keep constant AISM’s visibility and the spread of the correct information on Multiple Sclerosis throughout the province of Pavia. She is accredited with local online and offline media in order to be an authoritative source and a privileged interlocutor on the subject of Multiple Sclerosis. Through her press office she talks with the media about herself and her commitment to people with MS and the community to which she belongs.

Backers

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  5. Stefania Lanterna
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